Browsing by Author "Gallardo, Ana Maria"

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    Effectiveness of a video-feedback intervention in sensitivity response aimed at orphanage caregivers
    (2022) Gerber, Denise; Santelices, Maria Pia; Gallardo, Ana Maria; Mata, Cecil
    The present study evaluated the effectiveness of a group video-feedback intervention aimed at Chilean caregivers of a preschool and infants orphanage that intended to enhance adult sensitivity. Adult sensitivity has been associated with the development of secure attachments in children. Nevertheless, infants that grow in an institutional setting tend to have insecure attachment patterns. The study included a sample of 14 caregivers of Fundacion San Jose institution, which were divided in 4 groups each receiving 5 sessions of video-feedback. Differences were found between the general score of sensitivity and the subscales of responsivity and synchronicity before and after the intervention. These preliminary results are promising considering that it was the first time that a group video-feedback intervention had been applied in orphanage caregivers.
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    Universal Access to On-Demand Treatment of Patients with Hereditary Angioedema, the Chilean Experience
    (2023) Escobar, Juan J.; Aguirre, Joaquin; Ibanez, Samuel; Cid, Barbara J.; Campillay, Rolando; Gallardo, Ana Maria; Grau, Masumi; Hoyos-Bachiloglu, Rodrigo
    Background: In Chile, patients with hereditary angioedema (HAE) type I and type II are protected under Ley Ricarte Soto (LRS), which guarantees access to on demand plasma-derived C1-INH (pdC1-INH) since 2018. We aimed to analyze the first 3 years of LRS.Methods: Review of the LRS database between 2018 and 2021.Results: During the study period, 154 patients were covered by LRS, with an estimated prevalence of HAE in Chile at 0.8:100,000 inhabitants. A delay in diagnosis of 22 years was noted, 50 patients received epinephrine during an attack before the diagnosis of HAE. Mean number of attacks per year was 8, with 50% of adults and 42% of children experiencing more than 1 attack per month.Conclusion: Disease awareness must improve to reduce the diagnostic delay of HAE. Long-term prophylactic medications should be included in LRS to treat patients with high attack rates and control the costs of frequent on-demand treatment with pdC1-INH.