Browsing by Author "Lizama Calvo, Macarena"
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- ItemAdapting a quality of life scale for children and young people with Down syndrome in Chile(John Wiley and Sons Inc, 2023) Jofre Urrutia, Macarena Isidora; Bedregal, Paula; Lizama Calvo, Macarena© 2023 Wiley Periodicals LLC.In Chile, there are no validated instruments for the evaluation of quality of life (QoL) of people with Down syndrome (DS). To analyze construct validity and reliability of the KidsLife-Down scale in Chile to measure QoL in people with DS aged from 4 to 21 years. Families of boys, girls, and young people with DS between 4 and 21 years were invited to participate. The scale was answered by relatives or caregivers. To assess the internal consistency, reliability tests were performed using Cronbach's alpha coefficient. A confirmatory factor analysis was performed. The scale was answered by 531 relatives or caregivers. Cronbach's coefficient was greater than 0.7 in all the items. The confirmatory factor analysis of the scale allowed its validation for clinical use in the Chilean population. “Kids Life Down-Chile” scale has adequate psychometric properties to be used in clinical practice and to help us improve QoL with better support strategies.
- Item¿Cómo ejercer sus derechos si no hay oportunidadde nacer?(SOC CHILENA PEDIATRIA, 2023) Lizama Calvo, Macarena
- ItemInicio tardío de programas de atención temprana en niños y niñas con síndrome de down(2021) Fredes Araya, Danys Camila; Astudillo Paredes, Patricio Andrés; Lizama Calvo, MacarenaLa atención temprana (AT) es una intervención clave en la vida de niños y niñas con síndrome de Down (NNcSD). Iniciarla antes de los 60 días de vida (ddv) tiene mejores resultados en el desarrollo futuro. Objetivo: Evaluar los factores que retrasan el inicio de la AT en NNcSD. Sujetos y Método: Participaron padres/madres de NNcSD que asistieron a programas de AT durante su primer año de vida. Se registraron factores sociales, familiares y de salud relacionados al momento de inicio de la AT y se compararon de acuerdo al periodo de inicio de la AT, antes vs después de 60ddv. Para el análisis de variables categóricas se usó test exacto de Fisher y para la asociación entre variables numéricas test de t student para muestras independientes. Resultados: Se analizaron 125 cuestionarios. El 51,2% inició AT después de los 60ddv, de ellos, el 25% después de 6 meses. El inicio tardío de AT se asoció a hospitalización antes de los 3 meses de edad (OR = 2,5), estadías hospitalarias largas (OR 2,4), menor nivel educativo del padre (OR = 4,7) y de la madre (OR 3,4), nacimiento en sistema público (OR = 11,8) y acceso a centros gratuitos de AT (OR = 2,4). El nivel socioeconómico alto fue el único factor protector (OR = 0,4) para inicio precoz. Conclusiones: Más del 50% de los NNcSD inicia tardíamente programas de AT, principalmente por factores de salud y socioeconómicos. Esto se asoció a hospitalización precoz, prolongadas estadías intrahospitalarias y nivel socioeconómico. Es urgente destinar recursos y generar políticas públicas que permitan un acceso garantizado a programas de AT.
- ItemUrinary tract infection in a pediatrics emergency department: frequency and clinical parameters(2005) Lizama Calvo, Macarena; Luco, Matías; Reichhard Tornvall, Cristina; Hirsch Birn, TamaraUrinary tract infection (UTI) is a frequent bacterial infection in children. The objective was to define the profile of children with UTI that consulted in a Chilean pediatric emergency department (PED). We reviewed 18302 consultants and identified 1173 patients in whom urine culture (UC) were obtained. UC was positive in 264 cases. UTI represented 1.34% from total consultants and 21% from whom UC were obtained. UTI was 1.78 times more frequent in girls. The most common clinical presentation was fever and urinary tract symptoms. In older than 2 years, urinary tract symptoms and previous UTI, was a risk factor for UTI. The most frequent organism isolated was Escherichia coli (86%). Nine percent of child with UTI were hospitalized. UTI is a frequent diagnosis in PED and is important to consider urinalysis in febrile infants, especially boys younger than 12 months
- ItemUrine microscopy as screen for urinary tract infections in a pediatric emergency unit in Chile(2006) Luco, Matías; Lizama Calvo, Macarena; Reichhard Tornvall, Cristina; Hirsch Birn, Tamara