Browsing by Author "Rodriguez-Nunez, Alfredo"

Now showing 1 - 2 of 2
  • No Thumbnail Available
    Item
    Development and Validation of a Tool to Assess the Structural Quality of Palliative Care Services
    (2023) Gallastegui-Brana, Aintzane; Rodriguez-Nunez, Alfredo; Palacios, Josefa; Soto-Soto, Fernanda; Castellano, Joel; Soto-Guerreo, Sebastia; Perez-Cruz, Pedro E.
    Context. The current gap in access to palliative care requires the expansion of palliative care services worldwide. There is little information about the structural components required by palliative care services to provide adequate end-of-life care. No specific tools have been developed to assess the structural quality of these services. Objective. To develop and validate a tool to assess the structural quality of palliative care services. Methods. A scoping review of literature was performed to identify structural quality indicators of palliative care services. National experts participated in a two-round Delphi method to reach consensus regarding the importance and measurement feasibility of each proposed indicator. Consensus was reached for each indicator if 60% or more considered them both important and feasible. The selected indicators were tested among Chilean palliative care services to assess instrument psychometric characteristics. Results. Thirty-one indicators were identified. Thirty-five experts participated in a two-round Delphi survey. Twenty-one indicators reached consensus and were included in the structural quality of palliative care services tool (SQPCS-21). This instrument was applied to 201 out of 250 palliative care services in Chile. Achievement for each indicator varied between 8% and 96% (mean 52%). The total SQPCS-21 score varied between 3 and 21 points (mean 11 points). Conclusion. The SQPCS-21 tool to assess structural quality of palliative care services, has good content and construct validity and its application provides information about institutions at the individual and aggregated level. This tool can provide guidance to monitor the structural quality of palliative care worldwide. J Pain Symptom Manage 2023;65:490-499. (c) 2023 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.
  • No Thumbnail Available
    Item
    How to Advance Palliative Care Research in South America? Findings From a Delphi Study
    (2023) Paiva, Carlos Eduardo; Bonilla-Sierra, Patricia; Tripodoro, Vilma Adriana; Rodriguez-Nunez, Alfredo; De Simone, Gustavo; Rodriguez, Liliana Haydee; Vidal, Edison Iglesias de Oliveira; Rios, Miriam Riveros; Crispim, Douglas Henrique; Perrez-Cruz, Pedro; Nascimento, Maria Salete de Angelis; Ospina, Paola Marcela Ruiz; de Lima, Liliana; Pastrana, Tania; Zimmerman, Camilla; Hui, David; Bruera, Eduardo; Paiva, Bianca Sakamoto Ribeiro
    Context. Progress in palliative care (PC) necessarily involves scientific development. However, research conducted in South America (SA) needs to be improved.Objectives. To develop a set of recommendations to advance PC research in SA.Methods. Eighteen international PC experts participated in a Delphi study. In round one, items were developed (open-ended questions); in round two, each expert scored the importance of each item (from 0 to 10); in round three, they selected the 20 most relevant items. Throughout the rounds, the five main priority themes for research in SA were defined. In Round three, consensus was defined as an agreement of >= 75%. Results. 60 potential suggestions for overcoming research barriers in PC were developed in round one. Also in Round one, 88.2% (15 of 17) of the experts agreed to define a priority research agenda. In Round two, the 36 most relevant suggestions were defined and a new one added. Potential research priorities were investigated (open-ended). In Round three, from the 37 items, 10 were considered the most important. Regarding research priorities, symptom control, PC in primary care, public poli-cies, education and prognosis were defined as the most relevant.Conclusion. Potential strategies to improve scientific research on PC in SA were defined, including stimulating the formation of collaborative research networks, offering courses and workshops on research, structuring centers with infrastructure resour-ces and trained researchers, and lobbying governmental organizations to convince about the importance of palliative care. In addition, priority research topics were identified in the region. J Pain Symptom Manage 2023;65:193-202. (c) 2022 The Authors. Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine. This is an open access article under the CC BY -NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).