How to Advance Palliative Care Research in South America? Findings From a Delphi Study

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dc.contributor.authorPaiva, Carlos Eduardo
dc.contributor.authorBonilla-Sierra, Patricia
dc.contributor.authorTripodoro, Vilma Adriana
dc.contributor.authorRodriguez-Nunez, Alfredo
dc.contributor.authorDe Simone, Gustavo
dc.contributor.authorRodriguez, Liliana Haydee
dc.contributor.authorVidal, Edison Iglesias de Oliveira
dc.contributor.authorRios, Miriam Riveros
dc.contributor.authorCrispim, Douglas Henrique
dc.contributor.authorPerrez-Cruz, Pedro
dc.contributor.authorNascimento, Maria Salete de Angelis
dc.contributor.authorOspina, Paola Marcela Ruiz
dc.contributor.authorde Lima, Liliana
dc.contributor.authorPastrana, Tania
dc.contributor.authorZimmerman, Camilla
dc.contributor.authorHui, David
dc.contributor.authorBruera, Eduardo
dc.contributor.authorPaiva, Bianca Sakamoto Ribeiro
dc.date.accessioned2025-01-20T20:14:48Z
dc.date.available2025-01-20T20:14:48Z
dc.date.issued2023
dc.description.abstractContext. Progress in palliative care (PC) necessarily involves scientific development. However, research conducted in South America (SA) needs to be improved.Objectives. To develop a set of recommendations to advance PC research in SA.Methods. Eighteen international PC experts participated in a Delphi study. In round one, items were developed (open-ended questions); in round two, each expert scored the importance of each item (from 0 to 10); in round three, they selected the 20 most relevant items. Throughout the rounds, the five main priority themes for research in SA were defined. In Round three, consensus was defined as an agreement of >= 75%. Results. 60 potential suggestions for overcoming research barriers in PC were developed in round one. Also in Round one, 88.2% (15 of 17) of the experts agreed to define a priority research agenda. In Round two, the 36 most relevant suggestions were defined and a new one added. Potential research priorities were investigated (open-ended). In Round three, from the 37 items, 10 were considered the most important. Regarding research priorities, symptom control, PC in primary care, public poli-cies, education and prognosis were defined as the most relevant.Conclusion. Potential strategies to improve scientific research on PC in SA were defined, including stimulating the formation of collaborative research networks, offering courses and workshops on research, structuring centers with infrastructure resour-ces and trained researchers, and lobbying governmental organizations to convince about the importance of palliative care. In addition, priority research topics were identified in the region. J Pain Symptom Manage 2023;65:193-202. (c) 2022 The Authors. Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine. This is an open access article under the CC BY -NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
dc.description.funderSao Paulo Research Foundation (FAPESP)
dc.fuente.origenWOS
dc.identifier.doi10.1016/j.jpainsymman.2022.11.020
dc.identifier.eissn1873-6513
dc.identifier.issn0885-3924
dc.identifier.urihttps://doi.org/10.1016/j.jpainsymman.2022.11.020
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/92221
dc.identifier.wosidWOS:000965353800001
dc.issue.numero3
dc.language.isoen
dc.pagina.final202
dc.pagina.inicio193
dc.revistaJournal of pain and symptom management
dc.rightsacceso restringido
dc.subjectResearch
dc.subjectSouth America
dc.subjectpalliative care
dc.subjectbarriers
dc.subjectdelphi method
dc.subject.ods03 Good Health and Well-being
dc.subject.odspa03 Salud y bienestar
dc.titleHow to Advance Palliative Care Research in South America? Findings From a Delphi Study
dc.typeartículo
dc.volumen65
sipa.indexWOS
sipa.trazabilidadWOS;2025-01-12
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