Facilitators and barriers perceptions to early referral to pediatric palliative care perceived

Simple item page
dc.contributor.authorCeballos-Yanez, Diego
dc.contributor.authorAstudillo, Patricio
dc.contributor.authorEugenin-Soto, Maria Ignacia
dc.date.accessioned2025-01-20T20:09:27Z
dc.date.available2025-01-20T20:09:27Z
dc.date.issued2023
dc.description.abstractThe perception of facilitators and barriers to referral to pediatric palliative care (PPC) is a widely studied phenomenon, with scarce information in Latin America. Objective: to adapt a survey on the perception of facilitators and barriers to PPC referral and evaluation. Subjects and Method: elec-tronic survey with cultural adaptation with translation-retrotranslation in pediatricians and pediatric subspecialists of 3 tertiary centers in Santiago. The survey consisted of 4 sections and 51 questions, corresponding to sociodemographic data (including self-perception of spirituality and religiosity), training and clinical practice of the respondent in PPC, and facilitators and barriers to referral to PPC. Results: 146 pediatricians were invited and 78 surveys were obtained (response rate: 53.4%). The median age was 42 years and 11.5 years of professional practice. The majority corresponded to pediatricians without subspecialty training (n = 34; 43.6%). Twenty-three (29.5%) of the partici-pants received PPC training, which was perceived as insufficient in 17 (74%) cases; there were also no differences in PPC training when comparing pediatricians with or without subspecialty training. Ninety-five percent of the respondents agreed with the perceived benefit of early referral to PPC for patients with life-threatening pathologies, regardless of their diagnosis, although only 47.7% stated that they had made a referral to a PPC team. The emotional relationship with the patients and their families was perceived as a barrier by pediatricians in those subspecialists susceptible to PPC com-pared with those who were not (20% vs. 50%; p = 0.03). Conclusion: A significant deficit in PPC training was detected. There were no differences in facilitators and barriers between pediatricians and subspecialties susceptible to PPC. Specialties not accustomed to PPC-susceptible patients may be affected by emotional factors in their decisions.
dc.fuente.origenWOS
dc.identifier.doi10.32641/andespediatr.v94i3.4382
dc.identifier.eissn2452-6053
dc.identifier.issn****_****
dc.identifier.urihttps://doi.org/10.32641/andespediatr.v94i3.4382
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/91998
dc.identifier.wosidWOS:001021516300003
dc.issue.numero3
dc.language.isoen
dc.pagina.final315
dc.pagina.inicio307
dc.revistaAndes pediatrica
dc.rightsacceso restringido
dc.subjectPalliative Care
dc.subjectPalliative Medicine
dc.subjectPediatricians
dc.subjectReferral and Consultation
dc.subject.ods03 Good Health and Well-being
dc.subject.odspa03 Salud y bienestar
dc.titleFacilitators and barriers perceptions to early referral to pediatric palliative care perceived
dc.typeartículo
dc.volumen94
sipa.indexWOS
sipa.trazabilidadWOS;2025-01-12
Files
Collections
Artículos de revistas