Adapting a quality of life scale for children and young people with Down syndrome in Chile

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dc.catalogadorvzp
dc.contributor.authorJofre Urrutia, Macarena Isidora
dc.contributor.authorBedregal, Paula
dc.contributor.authorLizama Calvo, Macarena
dc.date.accessioned2024-06-03T20:09:59Z
dc.date.available2024-06-03T20:09:59Z
dc.date.issued2023
dc.description.abstract© 2023 Wiley Periodicals LLC.In Chile, there are no validated instruments for the evaluation of quality of life (QoL) of people with Down syndrome (DS). To analyze construct validity and reliability of the KidsLife-Down scale in Chile to measure QoL in people with DS aged from 4 to 21 years. Families of boys, girls, and young people with DS between 4 and 21 years were invited to participate. The scale was answered by relatives or caregivers. To assess the internal consistency, reliability tests were performed using Cronbach's alpha coefficient. A confirmatory factor analysis was performed. The scale was answered by 531 relatives or caregivers. Cronbach's coefficient was greater than 0.7 in all the items. The confirmatory factor analysis of the scale allowed its validation for clinical use in the Chilean population. “Kids Life Down-Chile” scale has adequate psychometric properties to be used in clinical practice and to help us improve QoL with better support strategies.
dc.fuente.origenScopus
dc.identifier.doi10.1002/ajmg.a.63414
dc.identifier.eissn1552-4833
dc.identifier.issn1552-4825
dc.identifier.scopusidSCOPUS_ID:85173973701
dc.identifier.urihttps://doi.org/10.1002/ajmg.a.63414
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/86380
dc.information.autorucEscuela de Medicina; Jofre Urrutia, Macarena Isidora; S/I; 1095380
dc.information.autorucEscuela de Medicina; Lizama Calvo, Macarena; 0000-0002-7116-8762; 10944
dc.issue.numero2
dc.language.isoen
dc.nota.accesocontenido parcial
dc.pagina.final242
dc.pagina.inicio233
dc.publisherJohn Wiley and Sons Inc
dc.revistaAmerican Journal of Medical Genetics, Part A
dc.rightsacceso restringido
dc.subjectDown syndrome
dc.subjectPsychometric
dc.subjectQuality of life
dc.subject.ddc610
dc.subject.deweyMedicina y salud
dc.titleAdapting a quality of life scale for children and young people with Down syndrome in Chile
dc.typeartículo
dc.volumen194
sipa.codpersvinculados1095380
sipa.codpersvinculados10944
sipa.trazabilidadSCOPUS;2023-10-22
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