Research priorities in multiple sclerosis in Latin America: A multi-stakeholder call to action to improve patients care Research priorities in MS in LATAM

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dc.contributor.authorRojas, Juan, I
dc.contributor.authorCarnero Contentti, Edgar
dc.contributor.authorAbad, Patricio
dc.contributor.authorAguayo, Adriana
dc.contributor.authorAlonso, Ricardo
dc.contributor.authorBauer, Johana
dc.contributor.authorBecker, Jefferson
dc.contributor.authorBustos, Andrea K.
dc.contributor.authorCarcamo, Claudia A.
dc.contributor.authorCarra, Adriana
dc.contributor.authorCorrea Diaz, Edgard P.
dc.contributor.authorCorreale, Jorge
dc.contributor.authorCristiano, Edgardo
dc.contributor.authorDiaz, Alejandro J.
dc.contributor.authorFernandez Liguori, Nora
dc.contributor.authorFlores, Jose
dc.contributor.authorFruns, Manuel
dc.contributor.authorGarcea, Orlando
dc.contributor.authorGiachello, Susana M.
dc.contributor.authorGodoy, Melisa D.
dc.contributor.authorGracia, Fernando
dc.contributor.authorHamuy, Victor F.
dc.contributor.authorHenestroza, Paula R.
dc.contributor.authorNavarra, Javier A.
dc.contributor.authorNavas, Carlos
dc.contributor.authorPatrucco, Liliana
dc.contributor.authorPerez Bruno, Magdalena
dc.contributor.authorPrato, Andrea S.
dc.contributor.authorRivera, Victor M.
dc.contributor.authorRosa Martinez, Alma R.
dc.contributor.authorVanotti, Sandra
dc.contributor.authorVazquez, Macarena
dc.contributor.authorVizcarra, Darwin
dc.contributor.authorYsrraelit, Maria C.
dc.contributor.authorAlonso Serena, Marina
dc.date.accessioned2025-01-20T22:09:51Z
dc.date.available2025-01-20T22:09:51Z
dc.date.issued2021
dc.description.abstractAs human and economic resources are limited, especially in Latin America (LATAM), it is important to identify research priorities to improve multiple sclerosis (MS) patients care in the region. The objective was to generate a multidisciplinary consensus on research priorities in MS for patients care in LATAM by involving healthcare professionals and MS patient associations. Methods: consensus was reached through a four-step modified Delphi method designed to identify and rate research priorities in MS in LATAM. The process consisted of two qualitative assessments, a general ranking phase and a consensus meeting followed by a more detailed ranking phase Results: a total of 62 participants (35 neurologists, 4 nurses, 12 kinesiologists, 7 neuropsychologists and 4 patient association members) developed the process. At the final ranking stage following the consensus meeting, each participant provided their final rankings, and the top priority research questions were outlined. 11 research priorities were identified focusing on healthcare access, costs of the disease, physical and cognitive evaluation and rehabilitation, quality of life, symptoms management, prognostic factors, the need of MS care units and patient's management in emergencies like COVID-19. Conclusion: this work establishes MS research priorities in LATAM from multiple perspectives. To pursue the actions suggested could launch the drive to obtain information that will help us to better understand the disease in our region and, especially, to better care for affected patients.
dc.fuente.origenWOS
dc.identifier.doi10.1016/j.msard.2021.103038
dc.identifier.eissn2211-0356
dc.identifier.issn2211-0348
dc.identifier.urihttps://doi.org/10.1016/j.msard.2021.103038
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/94350
dc.identifier.wosidWOS:000687405300021
dc.language.isoen
dc.revistaMultiple sclerosis and related disorders
dc.rightsacceso restringido
dc.subjectMultiple sclerosis
dc.subjectResearch
dc.subjectPriorities
dc.subjectLatin America
dc.subject.ods03 Good Health and Well-being
dc.subject.odspa03 Salud y bienestar
dc.titleResearch priorities in multiple sclerosis in Latin America: A multi-stakeholder call to action to improve patients care Research priorities in MS in LATAM
dc.typeartículo
dc.volumen53
sipa.indexWOS
sipa.trazabilidadWOS;2025-01-12
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